nearly a year has gone by since my last post.. for that I am very sorry.. I have NOT forgotten about this beautiful little blog.. I have simply been busy with other blogs and with the educating of my blessings..
Life with 2E children is VERY busy... VERY engaging... and VERY full...
I confess... I have struggled with this blog.. though the topic is a passion of mine..
I am passionate about my blessings..
Passionate about education
home education
gifted education
and about the education of the twice exceptional and those with special needs in general.
and I am.. believe it or NOT.. a passionate blogger
: - )
yes... yet I struggled.. HOW could I share information with YOU dear reader.. that I did not have myself..
WHAT was wrong???
What was the diagnoses???
What was UP with my munchkins...
So bright they shine... and yet.. something so clearly amiss...
oooo I am certain there are those of you out there in cyber land who can relate..... the waiting.. the quest to find answers to WHAT IS THE MATTER WITH MY CHILD???
Dysgraphia is fine.. but we've done this therapy.. yes.. and THAT therapy... and yet.. so little progress.... and she is so defeated...
Fatigue
difficulty concentrating
vision worsening
poor hearing
anger yet extreme compassion
hyper sensitivities
visual disturbances... certain lighting upsetting to a certain child
hearing disturbances.. bothering to other children is certain sounds...
allergies to so MANY things
kidney issues
heart issues
and the list goes on and on and on and on....
and so did the list of doctors... of specialists.. of therapies... and supplements...
Last December.. I was diagnosed with Lyme Disease.
I was asked by the doctor, and my support group, if my children had any symptoms..
any bizarre un related, unexplainable issues..
hmmm ???
yah.. ya think??
I was told at this point that Lyme disease.. the spirochete Borrelia Burdorfi, can be transferred to your child during pregnancy... That they ought to be tested...
Each of my birth children tested positive for lyme disease...
Each of them have identical co-infections to mine...
It is believed that they each have Congenital Lyme disease.. there is NO reason to believe otherwise.
We are now in treatment.
Treatment is Long Term Antibiotics and supplements...
We are officially Gluten Free.. low dairy... low to borderline no soy
LIFE this year... has dramatically changed for our family.
School is still coming along... but it too looks different... Finding ways to challenge them, while trying to have a flexible enough schedule to deal with their days of being just plain ILL from medicines is hard...
My eldest son C.S.(age 14) has been diagnosed with
POTS (postural orthostatic tachicardial syndrom) he mee
possible siezures (he goes in soon for sleep studies)
HHV6
Babesia
Bartonella
Lyme
Daughter Princess KI
Dysgraphia
Babesia
Bartonella
HHV6
Lyme
Son Buddy
Bartonella
Babesia
HHV6
Lyme
oh... all that excitement.. and I failed to share we adopted!!!!!!!!!!!! yes!
a beautiful little boy! it all happened at right about the same time we were learning about this... He is a joy, and is just now learning to sit, and pull up to things :)
So...
Living Gifted... will perhaps expand.. to the giftings of life with 2E & raising kids IN REAL life, with illness, chaos and strife :)
because that is my world :)
Hope you are glad to have me back friends!
because I am glad to BE back!
